Thank you all for your lovely Facebook comments about my appointment today. I thought I’d put it all in a blog post rather than try to cram it into a status.
Right, so some of you know the thyroid story, some of you don’t. So here’s a catch up.
When I had my first PET scan, before I started chemo, I had a great big mass of orange showing up on my chest/lung. We asked the consultant if it was just in the one place and she explained that my thyroid had shown a hotspot too. She decided not to do anything about it at that point because there was a chance it was also part of the Hodge.
April was my next scan, and much to everyone’s relief, the big mass of orange on my chest had gone, however, the thyroid was still orange. She then decided to send me for a ultrasound and fine needle biopsy as we were fairly sure this wasn’t Hodge related.
I had the biopsy in June, and eventually my results coame back, however, they were “inconclusive”, so was referrend to an ENT consultant.
Fast forward to today (six months to the day since my diagnosis – wow, that’s gone quick!!) and I’m seen in ENT. The long and the short of it is that they don’t know what it is. I have a lump there, but we don’t know if it’s benign or malignant, although lots of thyroid lumps are benign. However, because it was showing orange on the scan, they don’t want to leave it and therefore they will more than likely remove it. That means another general anaesthetic, another scar and another stay in hospital. They aren’t in any particular hurry (hmmm, I’ve heard that before!) and have said it can wait until I’ve had chance to recover after chemo is over. They are going to discuss it in their MDT meeting and will see me again in two weeks to decide the next step, although surgery will probably be in a few months, which will probably end up being when I go on holiday, in which case I will ask them to rearrange.
I just feel like that I should be coming to the end of something now and that I should be able to move on, but instead of being able to do that, I have to start again with something else. Surely I’ve had my fair share now, isn’t it someone else’s turn yet?